Beyond The Tube: Real Stories, Real Advice

• Ep12: Paediatric Dietician With The Truth About Blends vs Formula

  In this episode, Fi chats with Hilarie Geurink, the founder of Blended Tube Feeding - a paediatric dietician and passionate advocate for real food blends. Hilarie has supported hundreds of families worldwide in making the switch to blended diets, helping them navigate medical resistance, build confidence, and simplify the process of nourishing their tube-fed children.We explore the benefits of blended diets, debunk common myths, and highlight practical tools to make the journey feel less overwhelming.Resources from Hilarie: • Blenderised Tube Feeding: What Does the Research Actually Say?   • Blended Tube Feeding BlogJoin the Community: Blended Tube Feeding Made SimpleHilarie also runs Blended Tube Feeding Made Simple, a private online community full of resources, recipes, getting-started videos, and family-to-family connection. Normally $37 USD/month - Beyond The Tube listeners get 25% off with our exclusive affiliate link: https://blendedtubefeeding.com/blended-tube-feeding-made-simple-affiliate/?affiliate_code=db7bc8 No lock-in. Cancel anytime. Get what you need, stay as long as it helps.Follow on Instagram: @blendedtubefeedingWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected]

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• Ep11: Navigating Feeding Challenges - The Marathon, Not the Sprint

  This is a vital conversation for any parent navigating feeding challenges and looking for compassionate, practical guidance.In this episode, speech pathologist Eliza from Milk and Munch joins Fi to discuss the intricacies of paediatric feeding therapy. She explains her specialisation and clarifies the key differences between a speech pathologist who focuses on communication and one who centres on feeding.Eliza breaks down two common but often misunderstood challenges (oral aversion and dysphagia), explaining what they are, how they can co-exist, and the child-led strategies used to manage them. She reinforces that feeding therapy is a long game, emphasising the importance of building trust, advocating for your child, and celebrating even the smallest steps of progress. Milk & Munch are a passionate and experienced Speech Pathology / Feeding Therapy team based on the Central Coast, NSW, who support infants and children with a wide range of feeding difficulties including paediatric feeding disorder, paediatric dysphagia, breastfeeding, bottle feeding, tube feeding and more. Connect with Eliza from Milk & Munch:Website → www.milkandmunch.com.auInstagram → www.instagram.com/milk.and.munchA massive thanks to our sponsor TubieFun. Check out their products and community on Instagram: @tubiefunau We’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep10: Leaving Hospital Confidently

  Fi is joined by Manisha Uprety, a Nursing Specialist & Paediatric Complex Care Expert. She shares invaluable advice for parents navigating the often overwhelming transition from hospital to home with a tube-fed child.Manisha stresses the importance of parents becoming the loudest voice for their child, ensuring they don't accept a discharge until they feel completely confident and equipped. She provides a clear framework for what to ask for (including written plans, extra training, and at-home support). The conversation also covers practical day-to-day management, including what to do in an emergency, and how to get help for continence related issues.A massive thanks to our sponsor TubieFun! Check out their products and community on Instagram: @tubiefunau We’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected]: https://youtube.com/@BeyondTheTubeConnect with Uprety Health:Instagram: @upretyhealthWebsite: https://www.upretyhealth.com.au Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep9: The Charity with No Means Testing

  Well, this episode will certainly give you the warm fuzzies!Today, Fi sits down with two incredible sisters, Loz and Rhonda, the driving force behind Central Coast Kids in Need. They share the story of their one-of-a-kind charity that provides crucial financial support to families with sick children on the NSW Central Coast.The organisation operates with no means testing, ensuring help gets to those who need it, when they need it. Loz and Rhonda explain how they assist families with costs for accommodation, petrol, tolls, high-cost prescription formulas (like Neocate), feeding tube supplies, medications, and specialised equipment. This conversation highlights the power of community and the profound impact of grassroots charity work.You can help make a real difference When you donate to CCKIN you can be assured the funds are going directly to the kids - and their families - who need it the most.Donate at: www.cckin.com.au/donateAnd please follow their work on Instagram: @centralcoastkidsinneedA massive thanks to our sponsor TubieFun. Check out their products and community on Instagram: @tubiefunauWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out!Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep8: The App That Acts as a Second Brain for Parents

  Fi sits down with Sam, the co-founder of the Heba app, a tool designed to change how families manage and navigate the care of children with additional needs. Sam shares the personal story behind the app's creation, stemming from his experiences with family and volunteering.He explains how Heba helps families move away from paper folders and scattered notes to a single, secure digital space. Heba is a purpose-built app designed to support families of children with disabilities and complex medical needs. It brings together care coordination, progress tracking, and goal-setting into one easy-to-use platform. By helping parents stay organised and connected with their care team, Heba reduces the overwhelm and makes navigating medical needs more manageable - giving families back time, clarity, and confidence.Heba Website: https://www.heba.careFollow Heba on Instagram: @heba.care Download the App: https://apps.apple.com/au/app/heba-child-health-journal/id6448462377 And a massive thanks to our sponsor TubieFun. Check out their products and community on Instagram: @tubiefunauWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out!Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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