Beyond The Tube: Real Stories, Real Advice

• Ep17: Be a Pest! Why Persistent Advocacy is Your Best Tool

  In this episode, I’m joined by Reidena Barrett, Complex Care Coordinator, to explore the vital role care coordinators play in supporting families of children with medical complexity. Reidena shares her experience working alongside families, health professionals and support networks to make sure no detail is missed and every child gets the care they need.From navigating hospital stays to coordinating services at home, Reidena gives an inside look at what makes effective care coordination truly life-changing for families.This episode is proudly sponsored by Spewy - the versatile must-have for families. From spills to bed protection, Spewy makes life easier for parents and carers, and they also accept NDIS orders.✨ Enjoy 15% off your order with the code BEYOND 🌐 Shop now: https://spewy.com.au and follow on Insta @spewyau We’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep16: NDIS Admin - How to Remove the Burden

  In this episode, I'm joined by Simone from Plan Tracker, to explain the often confusing world of NDIS plan management.She breaks down the three ways you can manage NDIS funding (plan managed, self managed, and agency managed) and explains the statistics on which options are most popular. Simone also clarifies what a plan manager actually does, focusing on how they remove the administrative burden from families.I share my personal experience with being self-managed but still using Plan Tracker's support to successfully gain funding for critical equipment. We also discuss the different tools available (like the 'Number Cruncher') and the community work PlanTracker does.This episode is proudly sponsored by Plan Tracker. Plan Tracker specialise in helping families get the most from their NDIS funding with tools, guidance, and community support to make plan management simple. Follow on Insta: @plantracker or online at plantracker.com.auWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep15: What Makes a Great Support Worker and Why Finding the Right Person Matters!

  Finding a reliable support worker can be stressful, especially during an emergency. What happens when your regular support worker calls in sick, has an accident, or you need to find someone new at short notice?Trent from Care Agency Services joins me to talk about how his agency provides a safety net for families and NDIS providers. He explains their process for hiring, vetting, and training a pool of support workers who are ready to fill roster gaps (often at the last minute). Trent also provides essential tips for families who are looking to hire a support worker for the first time, covering what questions to ask and the importance of professional boundaries.This episode is proudly sponsored by Care Agency Services, who specialise in providing experienced, compassionate support workers - even at short notice - to help families when they need it most.Follow on Insta: @care_agency_services or visit them at www.careagencyservices.com.auWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep14: A Sibling's Perspective - Life with a Medically Complex Brother

  What is it really like to be the sibling of a child with additional medical needs?In this episode, I sit down with my two older kids, Keira and Asher, as they share their honest perspective on what it’s like having Ezra as their brother. From the challenges to the changes, and the resilience they’ve built along the way, this conversation shines a light on the often-unseen impact of medical complexity on siblings.We’re also joined mid-episode by Tash and Nikki from Coasties Magazine, who are amplifying local voices and sharing community stories across the Central Coast. You can follow them on Instagram: @coastiesmag or visit them at coastiesmag.com.au.This episode is proudly sponsored by Spewy - the must-have product making family life easier (and less messy!). Listeners of Beyond The Tube can access an exclusive 15% discount using the code BEYOND at checkout.You can follow them on Instagram: @spewyau or visit them at spewy.com.au. I'd love to hear from you - please feel free to reach out!Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep13: Oral Aversion - Amy's Story of Hitting Rock Bottom & Finding Hope

  Listener discretion is advised. This episode contains a personal account of a traumatic parenting journey, including a brief mention of self-harm. If this conversation brings anything up for you, help is available. You can contact Lifeline anytime on 13 11 14.In this powerful episode, Fi is joined by Amy, who shares the deeply personal and challenging story of her son, Thomas. Amy recounts how a negative experience at a residential stay led to an oral aversion, dehydration, and ultimately, an NG tube.Amy speaks with raw honesty about the isolation that followed, the lack of resources in New South Wales, and the emotional toll it took on her and her family. She details her fight within a fractured health system, facing rejections from multiple paediatricians and navigating the conflict between public and private care. This is a story about a mother’s desperation, resilience, and the profound impact of finally finding a supportive medical team that helped Thomas become tube-free.A massive thanks to our sponsor Blended Tube Feeding.Join the Community!Blended Tube Feeding Made Simple is a private online community full of resources, recipes, getting-started videos, and family-to-family connection. Normally $37 USD/month - Beyond The Tube listeners get 25% off with our exclusive affiliate link: 👉 https://blendedtubefeeding.com/blended-tube-feeding-made-simple-affiliate/?affiliate_code=db7bc8 No lock-in. Cancel anytime. Get what you need, stay as long as it helps.Find out more and follow on Instagram: @blendedtubefeedingWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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