Beyond The Tube: Real Stories, Real Advice

• Ep15: What Makes a Great Support Worker and Why Finding the Right Person Matters!

  Finding a reliable support worker can be stressful, especially during an emergency. What happens when your regular support worker calls in sick, has an accident, or you need to find someone new at short notice?Trent from Care Agency Services joins me to talk about how his agency provides a safety net for families and NDIS providers. He explains their process for hiring, vetting, and training a pool of support workers who are ready to fill roster gaps (often at the last minute). Trent also provides essential tips for families who are looking to hire a support worker for the first time, covering what questions to ask and the importance of professional boundaries.This episode is proudly sponsored by Care Agency Services, who specialise in providing experienced, compassionate support workers - even at short notice - to help families when they need it most.Follow on Insta: @care_agency_services or visit them at www.careagencyservices.com.auWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep14: A Sibling's Perspective - Life with a Medically Complex Brother

  What is it really like to be the sibling of a child with additional medical needs?In this episode, I sit down with my two older kids, Keira and Asher, as they share their honest perspective on what it’s like having Ezra as their brother. From the challenges to the changes, and the resilience they’ve built along the way, this conversation shines a light on the often-unseen impact of medical complexity on siblings.We’re also joined mid-episode by Tash and Nikki from Coasties Magazine, who are amplifying local voices and sharing community stories across the Central Coast. You can follow them on Instagram: @coastiesmag or visit them at coastiesmag.com.au.This episode is proudly sponsored by Spewy - the must-have product making family life easier (and less messy!). Listeners of Beyond The Tube can access an exclusive 15% discount using the code BEYOND at checkout.You can follow them on Instagram: @spewyau or visit them at spewy.com.au. I'd love to hear from you - please feel free to reach out!Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep13: Oral Aversion - Amy's Story of Hitting Rock Bottom & Finding Hope

  Listener discretion is advised. This episode contains a personal account of a traumatic parenting journey, including a brief mention of self-harm. If this conversation brings anything up for you, help is available. You can contact Lifeline anytime on 13 11 14.In this powerful episode, Fi is joined by Amy, who shares the deeply personal and challenging story of her son, Thomas. Amy recounts how a negative experience at a residential stay led to an oral aversion, dehydration, and ultimately, an NG tube.Amy speaks with raw honesty about the isolation that followed, the lack of resources in New South Wales, and the emotional toll it took on her and her family. She details her fight within a fractured health system, facing rejections from multiple paediatricians and navigating the conflict between public and private care. This is a story about a mother’s desperation, resilience, and the profound impact of finally finding a supportive medical team that helped Thomas become tube-free.A massive thanks to our sponsor Blended Tube Feeding.Join the Community!Blended Tube Feeding Made Simple is a private online community full of resources, recipes, getting-started videos, and family-to-family connection. Normally $37 USD/month - Beyond The Tube listeners get 25% off with our exclusive affiliate link: 👉 https://blendedtubefeeding.com/blended-tube-feeding-made-simple-affiliate/?affiliate_code=db7bc8 No lock-in. Cancel anytime. Get what you need, stay as long as it helps.Find out more and follow on Instagram: @blendedtubefeedingWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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• Ep12: Paediatric Dietician With The Truth About Blends vs Formula

  In this episode, Fi chats with Hilarie Geurink, the founder of Blended Tube Feeding - a paediatric dietician and passionate advocate for real food blends. Hilarie has supported hundreds of families worldwide in making the switch to blended diets, helping them navigate medical resistance, build confidence, and simplify the process of nourishing their tube-fed children.We explore the benefits of blended diets, debunk common myths, and highlight practical tools to make the journey feel less overwhelming.Resources from Hilarie: • Blenderised Tube Feeding: What Does the Research Actually Say?   • Blended Tube Feeding BlogJoin the Community: Blended Tube Feeding Made SimpleHilarie also runs Blended Tube Feeding Made Simple, a private online community full of resources, recipes, getting-started videos, and family-to-family connection. Normally $37 USD/month - Beyond The Tube listeners get 25% off with our exclusive affiliate link: https://blendedtubefeeding.com/blended-tube-feeding-made-simple-affiliate/?affiliate_code=db7bc8 No lock-in. Cancel anytime. Get what you need, stay as long as it helps.Follow on Instagram: @blendedtubefeedingWe’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected]

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• Ep11: Navigating Feeding Challenges - The Marathon, Not the Sprint

  This is a vital conversation for any parent navigating feeding challenges and looking for compassionate, practical guidance.In this episode, speech pathologist Eliza from Milk and Munch joins Fi to discuss the intricacies of paediatric feeding therapy. She explains her specialisation and clarifies the key differences between a speech pathologist who focuses on communication and one who centres on feeding.Eliza breaks down two common but often misunderstood challenges (oral aversion and dysphagia), explaining what they are, how they can co-exist, and the child-led strategies used to manage them. She reinforces that feeding therapy is a long game, emphasising the importance of building trust, advocating for your child, and celebrating even the smallest steps of progress. Milk & Munch are a passionate and experienced Speech Pathology / Feeding Therapy team based on the Central Coast, NSW, who support infants and children with a wide range of feeding difficulties including paediatric feeding disorder, paediatric dysphagia, breastfeeding, bottle feeding, tube feeding and more. Connect with Eliza from Milk & Munch:Website → www.milkandmunch.com.auInstagram → www.instagram.com/milk.and.munchA massive thanks to our sponsor TubieFun. Check out their products and community on Instagram: @tubiefunau We’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out! Instagram: @beyond.the.tube.podcast Email: [email protected] is a Podvan Media production.

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