Beyond The Tube: Real Stories, Real Advice

• Fighting for What’s Fair: Making the NDIS Work for You

  𝙇𝙞𝙨𝙩𝙚𝙣 𝙣𝙤𝙬 𝙗𝙮 𝙨𝙚𝙖𝙧𝙘𝙝𝙞𝙣𝙜 𝙛𝙤𝙧 𝘽𝙀𝙔𝙊𝙉𝘿 𝙏𝙃𝙀 𝙏𝙐𝘽𝙀 𝙤𝙣 𝙎𝙥𝙤𝙩𝙞𝙛𝙮 𝙤𝙧 𝘼𝙥𝙥𝙡𝙚 𝙋𝙤𝙙𝙘𝙖𝙨𝙩𝙨.NEW EPISODES FORTNIGHTLY on THURSDAYSHow do you advocate for the right support when your child has complex feeding needs?In this episode, I’m joined again by NDIS consultant Belle Kelly to deep dive into the specific supports available for our tube-fed kids—whether they’re on NG tubes, PEGs or experiencing feeding difficulties that affect day-to-day life.We go beyond the basics and talk about the real-life challenges families face trying to get support work funded for young kids, why pre-packaged meals are still valid, and how to navigate the tricky conversation around “informal supports.”Belle brings practical strategies and lived insight, from capacity building tips to creative ways to present funding requests that actually get heard.Whether you’re planning your first NDIS meeting or gearing up for a tough review, this one’s full of gold.A massive thanks to our sponsor ⁠⁠TubieFun⁠⁠. Check out their products and community on Instagram: ⁠⁠@tubiefunau⁠⁠We’re building a community here – one story at a time – and I’m so glad you’re along for the ride.Please feel free to reach out!Instagram: ⁠@beyond.the.tube.podcast⁠Email: ⁠[email protected]⁠This is a ⁠⁠Podvan Media⁠ production.

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• Unlocking NDIS Support – Belle Kelly’s Essential Advice

  What’s it like to navigate the world of NDIS as a family living with medical complexity? This episode is absolutely eye-opening, with so much to learn and advocate for.In this one, Fi is joined by Belle Kelly, a business consultant who’s spent more than two decades in the disability sector, specialising in supporting NDIS providers and families. They get right into the complex world of NDIS plans, funding pathways and how to ensure you and your loved ones get the support you deserve.From Belle’s personal experiences to Fi’s own journey as a self-managed NDIS participant, you’ll hear what works, what doesn’t, and how to push back against a system that can feel overwhelming.If you’re an NDIS participant or supporting someone who is, we hope this is helpful for you.A massive thanks to our sponsor ⁠TubieFun⁠. Check out their products and community on instagram: ⁠@tubiefunau⁠ We’re building a community here – one story at a time – and I’m so glad you’re along for the ride.Please feel free to reach out!Instagram: @beyond.the.tube.podcastEmail: [email protected] is a Podvan Media production.

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• Ep5: Navigating NDIS Funding + What a Speech Therapist Does

  How can speech therapy make a life-changing difference for kids and their families?In this episode, I chat with Bree, a speech therapist with over ten years’ experience who now runs a private practice and coaches other speech therapists. Bree explains how speech therapy covers so much more than just talking delays, from working with children who have feeding tubes to supporting social skills and collaborating with schools.We discuss how building strong relationships between families, therapists, teachers and support teams is key and share practical advice for parents feeling overwhelmed about speech therapy or navigating NDIS funding.Whether you’re a parent, carer or professional, this episode offers real life insights and hope for the journey ahead.We’re building a community here, one story at a time, and I’m so glad you’re along for the ride.Please feel free to reach out!📸 Instagram: ⁠@beyond.the.tube.podcast⁠📧 Email: [email protected]🎙️ This is a ⁠Podvan Media⁠ production.

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• Ep4: Supporting Medically Complex Kids with Play Therapy

  What if the key to helping your medically complex child feel safe, confident, and understood… was play?In this episode, I’m joined by child therapist Belinda Baxter to explore the power of play therapy, especially for little ones navigating medical trauma, tube transitions, speech delays, and big emotions they can’t yet explain.Belinda breaks down how play therapy works, what it actually looks like in a session, and why it’s so effective for kids who struggle to express themselves with words. We also unpack my own journey with Ezra, and how play therapy has helped him not only face tough hospital procedures, but start to name and share how he really feels.You’ll walk away from this one with hope, insight, and plenty of practical ideas, whether you’re a parent, grandparent, or professional working with kids.We’re building a community here – one story at a time – and I’m so glad you’re along for the ride.Please feel free to reach out!📸 Instagram: @beyond.the.tube.podcast📧 Email: [email protected]🎙️ This is a Podvan Media production.

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• Ep3: How Do You Travel With A Tube-Fed Child?

  A family holiday with a tube-fed child? It might be more doable than you think.In this episode, I’m sharing how I took my son Ezra, who’s been tube-fed since he was one, on two overseas trips to Singapore and Hawaii. From getting syringes through airport security to feeding mid-air and packing the right gear, I’ll walk you through what worked, what didn’t, and what I’d do differently.I’ll share my travel checklist, how we handled customs, what I carried onboard, and why I now feel confident taking Ezra anywhere. If you’ve been putting off a trip because it feels too hard with a tubie, I hope this episode gives you the push you need.You’ve got this. And your little one deserves the adventure!Instagram: @beyond.the.tube.podcastProduced and distributed by Podvan Media Hosted on Acast. See acast.com/privacy for more information.

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